Allis Care Center is truly a family environment that puts the needs and concerns of it's employees and residents above all. If in doubt, just ask Audrianna Burks, Certified Nursing Assistant at Allis Care Center, about the love and support she has received since she found out her infant son, MJ, was diagnosed with a rare terminal disease.
Ten month old MJ, was diagnosed with Krabbe Disease 2 months ago. According to the Mayo Clinic, krabbe disease is an inherited disorder that destroys the protective coating (myelin) of nerve cells in the brain and throughout the nervous system. Krabbe disease affects about 1 in 100,000 people in the United States and is also known as globoid cell leukodystrophy. In most cases, signs and symptoms of Krabbe disease develop in babies before 6 months of age, and the disease usually results in death by age 2. There's no cure for Krabbe disease; however, Burks has traveled to New York City this week and is hopeful her son will be eligible for a clinical trial.
Over the last two months, Burk's co-workers have rallied to help support her and her family, which also includes two additional children. Through monetary and in-kind donations, the employees of Allis Care Center are making a difference, but are ready to do more through upcoming raffles and other fundraisers.
"Everyone has come together to support Audrianna and MJ. Audrianna's sister is also an employee at Allis Care Center and has been able to share updates with our staff about MJ's condition. Right now, he is one sick little boy," said Human Resources Director Anna Rondinelli.
MJ is currently seeing specialists at Children's Hospital and receives in home nursing care and therapy as his condition declines.